Grief: Survivors Guilt

“If I die,” Sam told me from his hospital bed, “I want you to be okay.” “You’re not going to die.” I told him. Though he probably couldn’t hear me, even with his CI (Cochlear Implant) on. It was always hard for him to hear when he was distracted, and he was very distracted at […]

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Lights

Lights were a big theme in my marriage to Sam.  Yesterday I took the lights in our room down.  It made me emotional and moody the entire day.  I tried to explain why to a friend, but Sam said it better: Is this not a reason for tears if I shed them? Whether for joy, […]

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My Hobbit needs an upgrade!

My Hobbit needs an upgrade!. Sam, my husband (who I affectionately call “My Hobbit”) has Usher’s Syndrome.  He is deaf and going rapidly, completely blind.  We found out recently that his old CI (Cochlear Implant) processor was obsolete, and he would have to get a completely new one for his implant.  Please check out the […]

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Define Normal

Define Normal. – I thought everyone might be interested in this insight I gained from my husband (who suffers from Usher’s Syndrome) when we went to see The Hobbit on New Years Day.  This original post is at my ‘real life’ blog (about me, my hobbit and our adventures in deafblind land) withclosedcaptions.wordpress.com –

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